A higher chance to develop PTSD like symptoms due to ASD?
Recently I've been thinking, while flipping through the copy of my end assesment/diagnosis of my therapist.
Could it be possible that due to the way people on the spectrum are said to process information, as well as sensory stimuli overload, that some might be more prone to exhibit more Post-traumatic stress disorder like symptoms?
The likeliness that certain everyday things might be to stressful and lead to avoidance or more severe anxiety and thus for a impairment to function "normally". I feel it's quite similar to a meltdown, where avoidance might be more something to where you're "overprotective" of yourself to not expose yourself to possible triggers.
It's just a random thought I had. Anyone care to share thoughts about it?Re: A higher chance to develop PTSD like symptoms due to ASD?
I think it is less socially acceptable to have meltdowns as we pass from childhood / adolescence to adulthood. While we're kids we know our parents will tolerate our symptomatic behaviour; however, we soon learn that our peers and other adults are less tolerant of it. For instance, my Aspergers-and-schizophrenic stepson would only have meltdowns in front of his family, and never at school or out in public. Others couldn't imagine the meltdown behaviour - which he'd store up all day waiting for a time and a trigger to vent. Other's always commented what an angel he was in their presence. It is sadly ironic that the people who love the Aspergers child the most are the ones who suffer the most.
As adults we suppress this frustration or redirect it into other channels - which could potentially manifest as, say, PTSD-like symptoms. I know I have taught myself to calm down to cope with my extreme anxiety; otherwise I don't think I could have coped with half of what I have had to endure over the last few years. To others I must look cool and unfazed, but this is a front; one which may well be causing me harm in other ways (bottling up all my tension cannot be healthy).Last edited by arthurfakaya; 11th June 2012 at 08:05 AM.
Re: A higher chance to develop PTSD like symptoms due to ASD?
I actually have PTSD; my main symptom is disassociation.
Re: A higher chance to develop PTSD like symptoms due to ASD?
I have PTSD too, but its not from AS. Its from other things that happened in my life. But I think it might be that I was more prone to it because of the way things do affect me. Maybe. I don't know. But it would be a good thing to maybe study in our population.
Re: A higher chance to develop PTSD like symptoms due to ASD?
Recently I've been thinking about this thread a bit. I wanted to open a new thread, but it might fit alongside this thread.
Since I'm looking into filing for disability benefits right now, the question arises in the sense of "what have you done to fix your issues"... I don't know if I've done enough, or more than enough, or not even enough, however, the thing that keeps popping up in terms of a question is;
How much is acceptable to out of your comfort zone? In general it's being stressed to go out of your comfort zone a bit, but what is a bit? And what if it backfires, who's to blame? Me for trying? The others for making the wrong assessment and "forcing" me? Is anyone even to blame.
My friend got talks with a doctor at disability benefits office and she told him "why don't you try meds?" and "why don't you try a (and she said this literally; well according to him) mindnumbing assembly job?". And while it's both vaild points to try, I feel that this doctor isn't aware of the problems it might give. My therapist told me that meds for me are a big risk over comorbid factors. And I've had my share of a "simple" job, it drove me mad and into a therapists office with a depression.
So in that... what's the accepted threshold of your comfortzone, clearly there's no universal answer to this, and as such they want everyone to try, yet we all know that some of us will have a meltdown, break stuff or get angry, not everyone is passive-agressive in meltdown mode. I am quite sure that if I were to, say... in an extreme case, have a meltdown, and in all rage cut someone with a blade I need on my job for opening boxes... I'm actually the one who gets blamed, but actually it's a consequence of forcing people out of comfortzones. And I feel things can be worse and lead to mental trauma... on that sidenote; I'll confess, that if I ever see my former supervisor anywhere, chances are I'm smashing his face in with a tile from the sidewalk. I'm having distressing thoughts and dreams just of that job (pretty much the only thing I have weird dreams about... previous jobs), and said supervisor... I don't know if it's nightmares, but at least... I feel, that within my psyche he fucked up badly. I hold a grudge over it. I'm fine with ignoring the company I worked at, but to be honest, I'd be happy if I ever read it burned down.
So yes, with that... comfortzones, being pushed out of them and in the end having somewhat of a mental trauma cause of it. I don't feel no one is to blame for it and actually I don't feel I should be blamed for my actions either... having someone with, well.. mental issues, and forcing him to something with a surprise outcome looks more like you're framing that person, just in case he does something bad.Re: A higher chance to develop PTSD like symptoms due to ASD?
I've wondered about Aspies & PTSD myself. Like all people, many of us have been subjected to or experienced additional traumatic events. Some were persistently singled out for abuse within their familial setting. Others among us faced bullying in school or the playground etc. This mightn't have even had anything to do with AS: some faced it because they were part of some visible minority group or were of a different (to whatever the mainstream is where they lived) religion. Having (some of us VERY significant ones!) social & emotional 'impairments' (differences..whatever..) our ability to understand, respond to, cope with & seek support for these challenges is also compromised. further complicating matters is the fact that the people to whom we would have to turn for support are most likely NTs (often clueless!) themselves!! Add to that our quirks & sensitivities & complex relationship with mainstream culture, I'd bet that we ALL have a degree of PTSD.
That doesn't even take into consideration Aspies who were bounced through the social services/foster care system like a basketball, those who lived in deeply dysfunctional homes or who themselves have been homeless or incarcerated!
As for what you could have done to somehow 'fix your issues' I'd say HOW could you possibly be expected do such a thing when the underlying fundamental differences between an Aspie & the Neurotypical-normative world remain glaringly intact? This is akin to expecting a soldier suffering from PTSD to 'get over it' while still on the battlefield witnessing horrors! For Aspies, there's no POST in PTSD. Although the bullying & direct abuse may have ended or lessened significantly, the social isolation, sense of shame, fear of doing the wrong thing, screwing up or melting down creates a 'bunker' mentality: a need to hunker down & protect oneself, retreat & regroup or hibernate altogether.
As an Aspie, I gauge my state of 'okayness' according to the checklist below.
If I'm:
1. physically alive, non suicidal & surviving,
2. not a hopelessly babbling detached mad woman (or man),
3. not a trembling emaciated addict
4. nor a violent maniac,
5. maintained a reasonable level of grooming & hygiene on person & your environment
6. Have taken care of my pets
7. Have on occasion talked to some people (be that work, family, spouse, friend, fellow student, shrink...who it is doesn't matter so much as the fact that I haven't completely gone awol)
8. Have paid basic attention to health/fitness/nutritional/medical needs
I'VE DONE ENOUGH!!!
Until NTs form some kind of committee & fix themselves & render the planet more user friendly for Aspies (& others with challenges) what we really will have is TSD.Re: A higher chance to develop PTSD like symptoms due to ASD?
I think the big thing is, and I've adressed it before in this thread; aspies can have a different way of perceiving the world... a small example would be if your parents would hit you as a kid. Some people say "it's part of raising them"... but what if, especially with the social unawareness of people on the spectrum, someone who gets slapped processes this action differently and has an intense hatred against said parent with harmful intentions.
I don't think you could blame the parents for trying to do what's right, I do want people to be reminded to the fact that there is no right. Just keep in mind that every person is different, and having a different mental wiring so to say, just adds to not expecting stuff.
As for your example Soup... the soldier example; I'm halfway that stage regarding employment. I'm unemployed and I'm given a free pass to NOT look for a job until I have my shit sorted out. The job center gave me that for the time being. But little do they know (or understand) is that I'm on that proverbial battlefield for 29 years already, and considering circumstances, I'm reasonably well off and not totally out of my mind.
But yeah, I think there might be a thing here or there regarding the way we might process information in situation that to other people are "just daily life", and I feel that, at least in for me, they imprint certain asociations that really should not be there I feel.Re: A higher chance to develop PTSD like symptoms due to ASD?
We are on the battlefield with you, King Oni.
What NTs consider to be normal daily life is deeply affecting them as well BUT, true to the intellectual shortcomings & excessive emotionality of the Neurotypical brain, they go readily into denial. So many of them are living off of anti-anxiety meds, anti-depressants, sleeping pills to sleep & red bull to awaken. Others are self-medicating with alcohol & illegal drugs or they're abusing prescriptions. This doesn't even consider how many of them have either Anorexia/bulimia or morbid obesity!
'Just daily life' as it has been structured by NTs is destroying their health & sanity too. Since they lack Asperger's, they are prone to hypocritically denying that they're going batty from it all. Many of them have anger management/rage issues. The divorce, domestic violence & child abuse rates are very high amongst them as well. Kind of makes me wonder who really has the disability!!! There are more of them than there are of us so they got to draft the blue prints for how the world & its cultures etc. would function. Had Aspies been a majority & had the right to design the world, it would be very different indeed!
I'm so glad that you have been given time to regroup & take care of yourself. I hope you are able to find or create gainful employment that is compatible with your Aspie temperament.Re: A higher chance to develop PTSD like symptoms due to ASD?
a lot of people seem to be in denial about how they are feeling but just seem to struggle on with it, obviously partially because they have to but to me, it's backwards, all of it, if aspies had designed the world it would probably be easier in some aspects but not others. Eg, most of us like to be alone and don't understand why people need constant contact with others, so if we designed jobs for people where they were on their own 40 hours a week, that might be good for aspie workers but horrible for other people. But then, other people might naturally have a different body clock, some people wake up at 7/8am and fall asleep at midnight, others find going to work at 8/ 9 pm comes much more naturally to them. When I did 6pm until 7am, I was alone for the entire time, and happily so, but when I was surrounded by people and staff in a retail store from 8 until 5pm, it drove me down mentally to the point of exhaustion, which is what a lot of people I talk to say they have. That would indicate working morning until evening isn't actually the most suitable shift pattern
Re: A higher chance to develop PTSD like symptoms due to ASD?
I've been to New York City, Rochester, NY, Philadelphia, Pittsburgh, bawl more (that's Baltimore to you non-natives, hon), Warshington,DC (yes, that' how the natives to Baltimore and Washington, DC, pronounce it., Chicago, M'wokee (that's how the cheese heads pronounce Milwaukee, where the street car goes down around the corner, aina-heh), Minneapolis-St. Paul, Rahckford, IL (Rockford), and Dallas/Ft. Worth. I keep coming back to South Central PA, since it says HOME.
Re: A higher chance to develop PTSD like symptoms due to ASD?
I have had a number of people tell me they want to see me in politics because they like the way I think. I'm probably not the only aspie in this department. I believe its because we see the reality of the situation, not the sugar coated bleeding heart happy care bear version many NTs want to believe in.
King Oni ... have you actually stopped and thought "nothing is wrong with me". You might have, I dunno. In a Neurotypical world I guess there is something wrong with us because we don't conform to the Neurotypical way of thinking or life. And I think its so sad that a doctor would say "here's some meds for you" when being an aspie is who we are. It almost sounds like the doctor is handing out meds for having blue eyes or something.
I honestly wouldn't be surprised if some of us at least had PTSD. How many of us have had the Neurotypical world tell us we are mentally ill or unstable? If we accept the Neurotypical view that we are retarded then that's what we will think. But I guess we all have to fight in our own way to show the world we are not retarded. We are part of it and until the world stops viewing us as disturbed or mentally ill we are going to fight an uphill battle.Re: A higher chance to develop PTSD like symptoms due to ASD?
So the entire PTSD deal drags on with me... I've been reading into it a bit more recently. I'm still not decided if I should see a doctor that might give me something more "professional".
Fact is; I don't know if it will help me a lot. Especially in the issues where it's the biggest problem; getting employed. Factor in that more recently I'm figuring out that part of my PTSD-like symptoms actually stem from jobs I had. Simply put I'm willing to say "any job I had in the past put me in a place of mental abuse". I'm willing to blame me aspergical mind for that. It's how I process this information that makes it sound like verbal and mental abuse. No wonder I'm really, really, really cautious to get employed or even in talks about employment. It's perfectly sensible self-preservation.
And it doesn't stop there. There's way too much in daily life that puts me on edge. Past memories and issues I've had (including rather small things like past relationships, but surely big things as well pretty much constant bullying), and the worst probably is; If I look at it myself I haven't been dealing with deaths, I haven't been in a war. It's not the.. let's say "common cause". It's merely the way my mind processes information that makes me hypervigilant and on edge 24/7.
I've been reading about how to get over PTSD as well. Seems a lot of people tend to avoid things that are related to trauma and that's apparently not the way to go. The best way to get past that feeling is by confronting it. if you've been in a car crash, the best thing to do is get in that car again. And perhaps that is the best way. Perhaps it's also the best way for Neurotypical people.
For me personally and the way my mind processes things, forcing me into a job will most likely create another trauma unless there is a lot of care to how I function and met halfway beyond PTSD and taken in consideration there's a big part of autism in this as well. I'm certain I pose a big problem for any employer to get me back into the system. It's not just that I have a temporary problem that needs to be taken care of, there's a perpetual problem as well, which can lead to new temporary problems. It would put anyone around me on edge to try really hard and not mess it up to put me back in a place that poses new problems for me. Honestly, I don't see that working.
Tuesday, December 24, 2013
Do People With Aspergers Develop PTSD like Symptoms Due To ASD?
Friday, November 22, 2013
Autism Sensory Integration Therapy for Autism and Aspergers
INTRODUCTION TO SENSORY INTEGRATION THERAPY
autism-help.orgChildren with Autism Spectrum Disorders such as Autism or Asperger's syndrome with frequently have problems with sensory problems, including their sense of touch, smell, hearing, taste and sight. Wearing certain fabrics, tasting certain foods, or normal everyday sounds may cause emotional outbursts. The opposite is also possible - the child with an Autism Spectrum Disorder may feel very little pain or actually enjoy sensations we would dislike: strong smells, intense cold or unpleasant tastes.
Along with this will frequently be difficulties in movement, coordination and sensing where one's body is in a given space. The brain seems unable to balance the senses appropriately in cases of Sensory Integration Dysfunction. The brain may not be able to filter out background stimuli yet admit what is important, so the person with Autism or Asperger's may have to deal with overwhelming amounts of sensory input day and night.
How sensory integration therapy typically works
The main form of Sensory Integration Therapy is a type of occupational therapy that places a child in a room specifically designed to stimulate and challenge all of the senses. During the session, the therapist works closely with the child to encourage movement within the room. Sensory integration therapy is driven by four main principles:
Sensory Integration therapy is careful to not provide children with more sensory stimulation than they can cope with. The occupational therapist looks for signs of distress. Children with lower sensitivity (hyposensitivity) may be exposed to strong sensations, while children with heightened sensitivity (hypersensitivity) may be exposed to quieter activities. Treats and rewards may be used to encourage children to tolerate activities they would normally avoid.
For more information on Sensory Integration Dysfunction, see the Sensory Problems fact sheet.
Guidelines for children with heightened sensitivity
Parents can find it very distressing when if their child rejects hugs, cuddles and other demonstrations of affection. This can be interpreted as a personal rejection when it is a discomfort with unpleasant touch. These guidelines may help in more appropriate touch with autistic children who have hypersensitivity:
• The child may find it easier to initiate hugging than receive it
• Touch is often more tolerable when the child anticipates it
• Firm, unmoving touch is better than light or moving touch
sensory integration Therapy for different SENSES
Touch
The sense of touch varies widely between children on the autism spectrum. Many kids enjoy the feel of sticky textures. Try experimenting with glue, play dough, stickers, rubber toys, sticky tape. Other things that can be great for tactile sensation are water, rice, beans and sand.
Children with Autism often enjoy a sense of firm overall pressure, such as wrapping them up in blankets, being squashed by pillows and big hugs. These can form a great basis for play, interaction and showing affection. Experiences that may be claustrophobic can be liked, such as being squashed between mattresses, and making tunnels or tents from blankets over furniture. Read Temple Grandin's story and the development of her 'hug machine'.
"Our son hates light touches. But we now play 'monster attacks', where we pick him up, turn him upside down, spin him around, throw him on the couch, bury him under cushions then sit on him, yelling and carrying on the whole time! He loves it, and over time we worked in hugs and strokes at the end of it all. Now we can show him affection normally as well, and he is more comfortable with the rough and tumble play of other young boys". PDC (we strongly suggest caution if 'burying' a child under cushions, to avoid suffocation - Ed.)
Appreciation of firm pressure to light touch seems to be very common on the autism spectrum. Try using deep pressure with the palm of your hand instead of stroking or light touch. Some children love being tickled, while of course others will hate it.
Smell
Be aware of your child's response to the smell of substances too. Experiment with putting different fragrances in play dough or rice. If your child actively likes strong odors, find toys that specialize in this.
Sound
Experiment with talking toys, games on computers, musical instruments, squeaky toys and all sorts of music. Clapping together, rhymes, repeating phrases and tongue twisters are useful activities.Auditory Integration Therapy may help in dealing with sounds.
Some children on the autism spectrum respond to music but not voices, in which case music therapy may help. Try speaking in a melodic or “sing-song” voice and see if the response improves. Try different tones of voice, pitches, and gauge your child' reaction. Loud or unexpected sounds generally won't be liked. Explain noisy toys to the child first then introduce it at a distance. In extreme cases, it may be worth introducing noise-making toys using social stories.
Sight
As you can gather, parents may need to play detective in finding the sensations their child is enjoying. Autistic kids were often reported as staring at nothing when young by their parents, when they were actually entranced by the movement of shadows on a wall, or listening to wind moving through the trees outside. Parents may need to work hard to find the things their child enjoys visually. It could be anything that is long and narrow. I might be things of a precise shade of orange. A preference for looking at straight lines is often reported. There are many toys that aim at stimulating sight with bright color schemes and flashing lights. Remember your child probably won't want to be taken by surprise! In some cases,visual therapy may be able to help.
Proprioceptive system
The Proprioceptive System helps children (and adults) to locate their bodies in space. Autistic children often have have poor proprioception and will need help to develop their coordination. Therapy may include playing with weights, bouncing on a trampoline or a large ball, skipping or pushing heavy objects.
Vestibular system
The Vestibular System is located in our inner ear. It responds to movement and gravity and is therefore involved with our sense of balance, coordination and eye movements. Therapy can include hanging upside down, rocking chairs, swings, spinning, rolling, somersaulting, cartwheels and dancing. All these activities involve the head moving in different ways that stimulate the vestibular system. Be careful to observe the child carefully to be sure the movement is not over stimulating.
Back and forth movement appears less stimulating than side-to-side movement. The most stimulating movement tends to be rotational (spinning) and should be used carefully. Ideally activities will provide a variety of these movements. A rocking motion will usually calm a child while vigorous motions like spinning will stimulate them. Merry-go-rounds, being tossed on to cushions or jumping trampolines can be real favorites with some children. Experimenting and careful introduction of each activity is the way to go!
Learning new skills involving movement
Skills such as tying shoe laces or riding a bike can be difficult as they involve sequences of movements. Therapy to help in this area may use swimming, mazes, obstacle courses, constructional toys and building blocks.
Difficulty with using both sides of the body together
Crawling, hopscotch, skipping, playing musical instruments, playing catch and bouncing balls with both hands are some of the many activities that can help with bilateral integration.
Hand and eye coordination
Activities may include hitting with a bat, popping bubbles, throwing and catching balls, beanbags and balloons.
Is Sensory Integration Therapy a proven treatment?
Although Sensory Integration Therapy is widely used and supported by anecdotal evidence, there is as yet little research that would establish it as an evidence-based treatment. One study found only poor quality evidence providing either no, or at best equivocal, support for Sensory Integration therapy (Dawson and Watling 2000). There have been many studies done but these have not been conducted rigorously enough for Sensory Integration Therapy to be considered an evidence-based treatment, despite it being widely used as an intervention for Autism and other developmental disorders.
I can't afford these therapies, or they don't exist in my area
The good news is that as with many intervention therapies, they can be done at home by the parents. When finances are a problem, you may be able to have one or two sessions with an occupational therapist who is experienced in Sensory Integration Therapy to get advice on home-based therapies. Contact your local Autism or Asperger's association as they will be able to put you in touch with free or low-cost services.
When there are no services in your area, you can still do home-based therapies. This fact sheet offers some ideas and there are many books available on Sensory Integration Therapy. Also, some Autism associations may respond to email enquiries from parents in remote regions.
Sensory issues are explored further in theSensory Problems fact sheet.
Click here to read an interview with Lorna Jean King on Sensory Integration Therapy